Below are some books recommended by Child Psychologist, C. Russell Clifton, Jr., PhD, who is a long time contributor to Hands to Love’s annual Hand Camp parent support program.
- Raising a Self-Disciplined Child: Help Your Child Become More Responsible ,Confident, and Resilient – Robert Brooks and Sam Goldstein, 2007
- Raising an Emotionally Intelligent Child – John Gottman, 1997
- Raising a Thinking Child: Help Your Child to Resolve Everyday Conflicts and Get Along with Others – Myrna B. Shure, 1994
- Raising A Thinking Child Workbook – Myrna B. Shure, 2000
- Raising a Thinking Preteen: The ‘I Can Problem Solve’ Program for 8 to 12 Year Olds – Myrna B. Shure, 2000
Christine Murray is a Family Counselor who has been involved with Hands to Love for many years. The article listed below is the product of her research on the efficacy of hand camp and its benefit to campers and their families.
- Strengths, Challenges, and Relational Processes in Families of Children With Congenital Upper Limb Differences (http://libres.uncg.edu/ir/listing.aspx?styp=ti&id=4547)
Christine E. Murray, PHD, LMFT, LPC; Erin L. Kelley-Soderholm, MED/EDS; and Thomas L. Murray, Jr., LMFT, LPC, NCC
The links provided by this website or any website of Hands to Love are provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by Hands to Love (its directors, officers, employees or agents) of any of the products, services, opinions or other content of such external sites or of the corporations or organizations or individuals associated therewith. Hands to Love bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.
National Foundation for Ectodermal Dysplasias – Website that helps empower and connect people touched by ectodermal dysplasias through education, support, and research.
Arthrogryposis Multiplex Congenita Support Inc. – Website that provides educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).
VACTERLnetwork.org – An organization that helps ensure that families have the assistance they need in order to support their children with VACTERL and young adults living with VACTERL.
Congenital Hand Deformities – Medscape.com reference guide to Congenital Hand Deformities
Amputee Coalition of America, ACA – ACA’s mission is to reach out to and empower people affected by limb loss to achieve their full potential through education, support and advocacy, and to promote limb loss prevention.
International Child Amputee Network (I-CAN) – Online information and support contacts to children with absent or underdeveloped limbs and their parents.
ASSH – American Society for Surgery of the Hand – A comprehensive online resource for hand, wrist, elbow and shoulder information prepared by the largest and oldest organization dedicated to care of the hand and upper extremity.
Are you looking for more information related to adaptations? Cecilia Cruse, OTR/L of School Specialty, has been kind enough to recommend the following resources to Hands to Love. Below each website has a summary of the types of information and products they provide. She is available to receive questions regarding adaptations for school and play from parents. You can reach her at the Abilitations Website.
My Special Needs Network – A social network for you to discover learning solutions that kids with special needs will love
abilitations.com – Abilitations® products provide you with solutions for balance, mobility, positioning, play, communication, sensory solutions, fine motor, and body works.
flaghouse.com – A premier global supplier of equipment and resources for physical education, sports, fitness, and recreation and for health, special needs, special education, sensory integration, and multi-sensory environments.
Enabling Devices – Assistive Technology, Products for People with Disabilities
Adaptive Sports Center – Offering adapted high alpine sports experiences such as snow skiing and snowboarding as well as summer time adventure experiences adapted to make each individuals experience successful regardless of their difference.
Friends of Hands to Love
You can never have enough support! Below are links to other organizations and websites that offer support and resources for children with upper limb differences and their families.
Challenged Athletes Foundation – Provides opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics.
Born Just Right – A place where parents can come to share stories, read stories and feel safe as we all learn how to be parent advocates for our kids.
Nubability – Encourage, inspire, and instruct congenital and traumatic amputees who have the desire to compete in organized sports.
One Little Fin – A mother’s blog that shares the struggles and accomplishments of having a child with a limb difference.
Living One Handed – Entertaining stories, experiences and humor about living one-handed
Lucky Fin Project – A nonprofit organization that exists to raise awareness and celebrate children and individuals born with symbrachydactyly or other limb differences.