ULD Resources

> Upper-Extremity Congenital Anomalies
Scott H. Kozin, MD – The Journal of Bone & Joint Surgery

> National Foundation for Ectodermal Dysplasias
Website that helps empower and connect people touched by ectodermal dysplasias through education, support, and research.

> Limb Differences.org
An online resource for families and friends of children with limb differences.

> Arthrogryposis Multiplex Congenita Support Inc.
Website that provides educational material to new parents, or soon-to-be parents regarding the diagnosis of arthrogryposis multiplex congenita (AMC).

> VACTERL Network.org
An organization that helps ensure that families have the assistance they need in order to support their children with VACTERL and young adults living with VACTERL.

> Amniotic Band Syndrom.com
An online resource dedicated to educating and supporting families and individuals affected by Amniotic Band Syndrome.

> Congenital Hand Deformities
Medscape.com reference guide to Congenital Hand Deformities

> Amputee Coalition of America, ACA
ACA’s mission is to reach out to and empower people affected by limb loss to achieve their full potential through education, support and advocacy, and to promote limb loss prevention.

> International Child Amputee Network (I-CAN)
Online information and support contacts to children with absent or underdeveloped limbs and their parents.

> ASSH – American Society for Surgery of the Hand
A comprehensive online resource for hand, wrist, elbow and shoulder information prepared by the largest and oldest organization dedicated to care of the hand and upper extremity.